WASHINGTON (AP) — When her daughter was diagnosed with a rare autoimmune disease in 2010, Amy Gleason attacked the challenge.
She carried binders of medical records to doctors’ appointments across six health systems seeking the best care for juvenile dermatomyositis. She volunteered at a nonprofit searching for a cure. She also started a health care company to create record-sharing software that would make life easier for chronically ill patients and families.
Within five years, President Barack Obama’s White House recognized Gleason as a “Champion of Change” in the industry. When the coronavirus struck in 2020, she was a health care technologist in the first Trump White House who worked grueling hours
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