The 9-year-old is one of only 20 people in the United States currently battling the disease.
EDMONDS, Wash. — In the game of life, Harper Foy is not one to sit on the sidelines.
As she plays soccer with her mother, Angie, at an Edmonds park, she’s asked if she is competitive.
“Yes!” Foy responded with a jump. “I like to win. I like to win everything.”
Foy is now in a battle for her life. She was born with a condition called harlequin ichthyosis.
It’s a genetic disorder that turns the skin all over Harper’s body thick and orange.
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